"Yesterday is history, tomorrow is a mystery but today is a gift... that's what they call it a present".
Kung Fu Panda
Three of the many outstanding camp counselors at XMO winter camp, Extreme Mobility for blind and visually impaired kids and young adults. You can see more about that non-profit organization here and at their FB page here.
XMO is an outstanding organization and as you can see in this pic, Madison is having the time of her life! This is her 4th time as an XMO counselor and each seems more rewarding to her that the last.
You can see Madison below, the beautiful soul wearing a black long-sleeve shirt with yellow writing.
Kung Fu Panda
Three of the many outstanding camp counselors at XMO winter camp, Extreme Mobility for blind and visually impaired kids and young adults. You can see more about that non-profit organization here and at their FB page here.
XMO is an outstanding organization and as you can see in this pic, Madison is having the time of her life! This is her 4th time as an XMO counselor and each seems more rewarding to her that the last.
You can see Madison below, the beautiful soul wearing a black long-sleeve shirt with yellow writing.
2017 XMO group pic below.
Now then! They're all beautiful souls...
Leading blind youth on skis, teaching them to drive snowmobiles... front seat a the controls, not being driven around! There's a sleigh ride planned, worship services daily, archery, etc... One can only imagine the sense of reward showing blind youth that Yes, you actually CAN drive a snowmobile, you CAN ski... here's how, you got this.... Seeeeee !" During Summer camp they were driving go-carts and water-skiing. How fun for all! Photo above, Madi is the front row, 6th in from the right.
So medically, what's the latest?! Looking back to December when the rogue lung got all pissy, fluid needed to be drained regularly. The disease seemed to be progressing and at one point there was two liters of drained out... yikes. A catheter was surgically inserted so Madison could self-drain, versus going to the hospital for that procedure weekly and she self drains ever four days. Starting the clinical trial meds January 31, our lay non-medical eyes see what they see every four days...
...a tad less fluid from the prior four days, and from the four days before that! Now we're not doctors but have become expert speculators. Seeing less fluid being drained implies less fluid is building up, implying the disease is not progressing, suggesting to the lay non-medical Jones clan the disease may be regressing thanks to the new meds. We know there is no pill that will cure cancer but appearances suggest that her clinical meds are helping manage the rogue lung in to submission!
Thanks for your prayers and positive energy!
Love,
The Jones
