Love, Loss, and Other Four Letter Words
  • Home
  • About Chordoma
  • Photo Gallery
  • Blog - Madison's Journal

Chemo Cycle 2 of 4 Complete

1/23/2014

 
Picture
Following the last post on 12/21/13, Madison developed a fever and was hospitalized 12/22-24, discharged on Christmas eve. Putting it lightly and to quote her, "that was a doozie". 

Madison completed round 2 of chemo January 6-10. While this round didn't have nearly the side effects as round 1, chemo is rotten nonetheless. 

This is probably the ugliest nurse on the planet, woof. He popped in for a visit but had to leave the hospital after a couple of hours. 

Madi's oncologist suggested we consult with a colleague of hers, a world renowned expert. We had a meeting today with the Director of Oncology at Children's Hospital, an affiliate of USC. He reviewed
Mass General's treatment plan and said that in his opinion, MGH was spot on with their recommendations... from A-Z, adding they're is best positioned to treat her given their experience and expertise. He was clearly an expert in the field and very gracious with his time. While all had absolute faith with MGH's treatment roadmap, hearing it again was a sigh of relief. Given the rarity of chordoma and adding to that the rarity of Madison's variation, it's nice to hear consistency since there is no conventional approach. 

Chemo round 3 of 4 is just a few days away, January 27-31. Madison will be hospitalized again given the toxic blend of the serums. As she summed it up so nicely, I start feeling really good and get my ass kicked again. The good news is that chemo round 1 halted tumor growth, and she's been through two rounds so far. While hopes are high that chemo shrinks the tumor measurably and it may, experts are saying with this type of chordoma, chemo will affect the characteristics of the tumor such that the next surgery will be less challenging. 

Chemo round 4 of 4 is scheduled for February 17-21. Then it's a bit of rest and off to Boston for 5 weeks of Proton therapy which should further kick the tumors butts we call Thing-1 and Thing-2, followed by surgery. 

Madison is feeling very chipper and optimistic all things considered. Thank you all for your overwhelming support! 

The Jones' 





    Archives

    December 2021
    September 2021
    August 2021
    May 2021
    January 2021
    December 2020
    November 2020
    October 2020
    August 2020
    July 2020
    May 2020
    February 2020
    January 2020
    December 2019
    November 2019
    October 2019
    September 2019
    August 2019
    July 2019
    June 2019
    May 2019
    April 2019
    March 2019
    February 2019
    January 2019
    December 2018
    November 2018
    October 2018
    September 2018
    August 2018
    July 2018
    June 2018
    May 2018
    April 2018
    March 2018
    February 2018
    January 2018
    December 2017
    November 2017
    October 2017
    September 2017
    August 2017
    July 2017
    June 2017
    May 2017
    April 2017
    March 2017
    February 2017
    January 2017
    December 2016
    November 2016
    October 2016
    August 2016
    July 2016
    June 2016
    May 2016
    April 2016
    March 2016
    February 2016
    January 2016
    December 2015
    November 2015
    October 2015
    September 2015
    August 2015
    May 2015
    April 2015
    March 2015
    February 2015
    January 2015
    December 2014
    November 2014
    October 2014
    September 2014
    August 2014
    July 2014
    June 2014
    May 2014
    April 2014
    March 2014
    February 2014
    January 2014
    December 2013
    November 2013
    October 2013
    September 2013
    July 2013

    Picture

    Categories

    All

Powered by Create your own unique website with customizable templates.