Love, Loss, and Other Four Letter Words
  • Home
  • About Chordoma
  • Photo Gallery
  • Blog - Madison's Journal

Happy Easter

3/27/2016

 
It's been a month since the last update. The update today, no real update but some progress. Madison finally met with an expert, top notch neck and throat cancer specialist. She really liked him... a lot, and she's seen enough doctors to be an expert evaluating their competence and confidence. 

She still can't eat but there is some light at the end of the tunnel. On April 24 she'll have a minor procedure to correct one of the two anomalies. This may allow her to actually eat and drink orally, which may help correct the second issue. 

So life continues... she is doing really well in school and is gradually becoming more involved with her church. The Winter Camp for blind kids (thread below) was extremely rewarding, some fun too! The fact that she couldn't eat... who notices? The fact that she consumed liquid food in the feeding tube in her tummy... none of the blind kids saw that either! 

The next milestone is on May 20th; Madison will be 21!!  We're looking forward to stuffing her full of sushi and her having her first legitimate cocktail...

...via her mouth! 

Thanks for following along, God bless, and we hope you had a very nice Easter!

The Jones'

    Archives

    December 2021
    September 2021
    August 2021
    May 2021
    January 2021
    December 2020
    November 2020
    October 2020
    August 2020
    July 2020
    May 2020
    February 2020
    January 2020
    December 2019
    November 2019
    October 2019
    September 2019
    August 2019
    July 2019
    June 2019
    May 2019
    April 2019
    March 2019
    February 2019
    January 2019
    December 2018
    November 2018
    October 2018
    September 2018
    August 2018
    July 2018
    June 2018
    May 2018
    April 2018
    March 2018
    February 2018
    January 2018
    December 2017
    November 2017
    October 2017
    September 2017
    August 2017
    July 2017
    June 2017
    May 2017
    April 2017
    March 2017
    February 2017
    January 2017
    December 2016
    November 2016
    October 2016
    August 2016
    July 2016
    June 2016
    May 2016
    April 2016
    March 2016
    February 2016
    January 2016
    December 2015
    November 2015
    October 2015
    September 2015
    August 2015
    May 2015
    April 2015
    March 2015
    February 2015
    January 2015
    December 2014
    November 2014
    October 2014
    September 2014
    August 2014
    July 2014
    June 2014
    May 2014
    April 2014
    March 2014
    February 2014
    January 2014
    December 2013
    November 2013
    October 2013
    September 2013
    July 2013

    Picture

    Categories

    All

Powered by Create your own unique website with customizable templates.