Yesterday morning it was time for 2:30 AM meds. Her ever-stealthy moms and dad are experts at not waking Madison up unless something warrants it. Yesterday Madison was half awake, groggy, and asked me "What did Steven say" and then again, what did Steven say, and then again, what did Steven say? Each time I told her what he said, but something must have been missing. As a reminder Windi came by the house and like everyone, would love to see Madison if she's up for it, even for a quick kiss the forehead. Denied, and Windi understood. Steven came by later and hung in the backyard visiting with Chris and Angela. He too was waived denied... Madison wasn't up for even a kiss on the forehead. I know when I'm feeling rotten, the circle of people in my world becomes very small. If I feel like hell and when hospitalized, then maybe another day. While disappointed, Steven understood and took off after a nice visit. Today Steven had seen a picture of Madi and me at Joanne's house down the street from a couple of days ago: he called me, I answered 'hello', and Steven blurted out "F**K: I was there an hour and didn't get to see her!" Hola Estebol, como esta?!
So how's Madison today? Per her doctor we slightly increased the base meds another notch again today, and cranked down the fast-acting which conk her out. She seems to be tolerating the reduced fast-acting meds well, but she is still sleeping quite a bit more than normal under similar medication circumstances. Madison is resting very comfortably... appearing to be in a very peaceful place, and each day without pain is a blessing.
Anyway, 2:30 AM yesterday Madison wanted to hear (again) the 'what-did-Steven-say story. Steven had said' ("F**K: I was there an hour and didn't get to see her!" Madi likes that story and wanted to hear it, but being groggy and slightly medicated, there was something missing this time. I told her the story several times, and then I finally told her that "Steven said that he loves you and knows that you love him". She replied "okay good". That was it, she stopped asking and went right back to sleep.
So if/as you're visiting with her moms or dad and Madison wants to hibernate or if semi-awake but not really wanting people to pop-in for even a brief a kiss on her forehead, the same rule applies: know in your hearts that Madison loves you, as she knows in hers that you love her too.
Love,
The Jones Family
Psssst, Estebon: The chair how Bailey get's on Madison's bed. When denied access, the pillows being the barrier. Bailey was denied access the same day you were here too. The tone in her bark matched your words : )
So how's Madison today? Per her doctor we slightly increased the base meds another notch again today, and cranked down the fast-acting which conk her out. She seems to be tolerating the reduced fast-acting meds well, but she is still sleeping quite a bit more than normal under similar medication circumstances. Madison is resting very comfortably... appearing to be in a very peaceful place, and each day without pain is a blessing.
Anyway, 2:30 AM yesterday Madison wanted to hear (again) the 'what-did-Steven-say story. Steven had said' ("F**K: I was there an hour and didn't get to see her!" Madi likes that story and wanted to hear it, but being groggy and slightly medicated, there was something missing this time. I told her the story several times, and then I finally told her that "Steven said that he loves you and knows that you love him". She replied "okay good". That was it, she stopped asking and went right back to sleep.
So if/as you're visiting with her moms or dad and Madison wants to hibernate or if semi-awake but not really wanting people to pop-in for even a brief a kiss on her forehead, the same rule applies: know in your hearts that Madison loves you, as she knows in hers that you love her too.
Love,
The Jones Family
Psssst, Estebon: The chair how Bailey get's on Madison's bed. When denied access, the pillows being the barrier. Bailey was denied access the same day you were here too. The tone in her bark matched your words : )
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