Love, Loss, and Other Four Letter Words
  • Home
  • About Chordoma
  • Photo Gallery
  • Blog - Madison's Journal

What a Difference a Half a Day Makes!

8/8/2017

 
Picture
Tuesday Aug 8, 8:00 PM update: Throughout this afternoon Madi has required less IV meds, in fact her last shot was available for her at 3:10 but she waved it off... not needed yet, her pain level is manageable. The other time-released meds seem to be kicking in, and the goal of course is to -not- need IV meds, and tweak the pain patch and pill form meds accordingly. The pain management specialist came in this evening, very pleased. Madison was sitting in a chair with her feet up on the bed albeit briefly.... having just returned from a very short walk. 

They can't prescribe IV pain meds for take-home use: required, trained nurses with all of the electronic monitors and resuscitation equipment in case of any respiratory challenges. Assuming we get her home this week, she may or may not come home with an oxygen tank. 

Up until yesterday they didn't want her out of bed and things seemed to deteriorate since her arrival Friday. She's still on IV antibiotics for the pneumonia, her can heart rev like a sewing machine at times, oxygen level a tad low... which may be her new normal. What a huge difference a half a day makes!! 

Next steps are to be IV free, try and get her home this week, then fatten her up like a Thanksgiving turkey, ideally to be physically prepared to continue with the current treatment roadmap, while exploring all options her expert chordoma team may consider. ​

​Love, 
​The Jones Family


Comments are closed.

    Archives

    December 2021
    September 2021
    August 2021
    May 2021
    January 2021
    December 2020
    November 2020
    October 2020
    August 2020
    July 2020
    May 2020
    February 2020
    January 2020
    December 2019
    November 2019
    October 2019
    September 2019
    August 2019
    July 2019
    June 2019
    May 2019
    April 2019
    March 2019
    February 2019
    January 2019
    December 2018
    November 2018
    October 2018
    September 2018
    August 2018
    July 2018
    June 2018
    May 2018
    April 2018
    March 2018
    February 2018
    January 2018
    December 2017
    November 2017
    October 2017
    September 2017
    August 2017
    July 2017
    June 2017
    May 2017
    April 2017
    March 2017
    February 2017
    January 2017
    December 2016
    November 2016
    October 2016
    August 2016
    July 2016
    June 2016
    May 2016
    April 2016
    March 2016
    February 2016
    January 2016
    December 2015
    November 2015
    October 2015
    September 2015
    August 2015
    May 2015
    April 2015
    March 2015
    February 2015
    January 2015
    December 2014
    November 2014
    October 2014
    September 2014
    August 2014
    July 2014
    June 2014
    May 2014
    April 2014
    March 2014
    February 2014
    January 2014
    December 2013
    November 2013
    October 2013
    September 2013
    July 2013

    Picture

    Categories

    All

Powered by Create your own unique website with customizable templates.