Unfortunately given the progression of lesions along Madi’s spine, her legs have become weaker recently. While she has been giving her walker what-for, she’d lost complete use of both legs last Friday. So wait, what does this mean... is this the beginning of the end? No. The doctor suggested that nerve impingement along her spine cut off the electrical connections to her legs (not her heart or her mind, nor is not bedridden).
On Saturday Madison made the decision to have us remove her queen bed and bring in a motorized hospital bet. She can sit up with the press of a button on her own maintaining some sense of independence. If/as she's willing to come to the couch or get in the car, she'll obviously need more assistance.
Another perk of a smaller bed is that we could move a trundle bed in to her room. Last night mama-bear Colleen spent the night with her and a BFF Nathan (trundle in another room) spent the night and most of the day today. Colleen's husband joined us this morning and made a wonderful breakfast.
I'm sorry to report this news and no, and again she's not bedridden. For people who saw Madi a week ago at church, it may come as a shock when you see her next given the loss of movement in her legs. She may feel sad making people feel sad, but she's Madi. The facial expressions she sees, that her family sees, seems to be of extreme sadness. We've read that type of anxiety is fear, unexpressed. It's okay to talk about the elephant sleeping under the Christmas tree, but then move on to the next subject... like what's new in your life. Yes, really!
Love,
The Jones Family
On Saturday Madison made the decision to have us remove her queen bed and bring in a motorized hospital bet. She can sit up with the press of a button on her own maintaining some sense of independence. If/as she's willing to come to the couch or get in the car, she'll obviously need more assistance.
Another perk of a smaller bed is that we could move a trundle bed in to her room. Last night mama-bear Colleen spent the night with her and a BFF Nathan (trundle in another room) spent the night and most of the day today. Colleen's husband joined us this morning and made a wonderful breakfast.
I'm sorry to report this news and no, and again she's not bedridden. For people who saw Madi a week ago at church, it may come as a shock when you see her next given the loss of movement in her legs. She may feel sad making people feel sad, but she's Madi. The facial expressions she sees, that her family sees, seems to be of extreme sadness. We've read that type of anxiety is fear, unexpressed. It's okay to talk about the elephant sleeping under the Christmas tree, but then move on to the next subject... like what's new in your life. Yes, really!
Love,
The Jones Family
