Hello Everyone, day 1 of 2 complete in San Francisco at UCSF.
We met with the clinical trial principle investigator/MDs in San Francisco today. He's obviously extremely bright, was very patient walking Madison through very detailed next steps and expectations. Later in the afternoon another meeting with the physician and the trial coordinator. Both awesome medical professionals
As mentioned there is explicit criteria for Madison to be considered as a candidate, or excluded from the trial. Today here and now, things are looking promising but all prayers are welcome! Extensive blood-work will be done tomorrow, an EKG too. While in a perfect world Madi would be able to have MRIs and CTs done as well, it doesn't appear that's in the cards for Friday, so another trip next week is required.
Next steps: return home tomorrow night and schedule to have fluid drained that is building up.... even consider a short term temporary tube so she can empty it herself. (reference Rogue Lung thread below). Once she has dates for final baseline imaging, it's back up to San Francisco since all imaging must be completed after written consent is signed (which was today). Imagine and blood-work must all be done on the USCF campus since where the clinical trial is registered. That's the same with blood work every two weeks... bouncing back and forth between Simi Valley and San Francisco.
Once the trial sponsor accepts the inclusion/exclusion criteria after all the tests are completed, only then can she definitively be approved for the trial. Then (you guessed it), back up to UCSF to take more blood, take the med... a pill form chemo tablet, then give more blood later in the day.
Wait, what!? Did I really just read chemo? Yes. There were some assumptions this trial was an immune-therapy but not the case here. The most common side effects with this drug include but not excluded to rectal bleeding, discoloration and/or dislodging of finger and toenails, and lips turning and staying green. <- don't read that again, only kidding but don't you love those commercials on TV?
All kidding aside, the most common side effects for this drug are fatigue.... and there may be some nausea. So how's Madi? As you can see in the picture, she's going with the flow. Madi has some of the best clinical researchers and brightest minds on her bench,
You can see more of January by pressing <<<Previous, lower left
We met with the clinical trial principle investigator/MDs in San Francisco today. He's obviously extremely bright, was very patient walking Madison through very detailed next steps and expectations. Later in the afternoon another meeting with the physician and the trial coordinator. Both awesome medical professionals
As mentioned there is explicit criteria for Madison to be considered as a candidate, or excluded from the trial. Today here and now, things are looking promising but all prayers are welcome! Extensive blood-work will be done tomorrow, an EKG too. While in a perfect world Madi would be able to have MRIs and CTs done as well, it doesn't appear that's in the cards for Friday, so another trip next week is required.
Next steps: return home tomorrow night and schedule to have fluid drained that is building up.... even consider a short term temporary tube so she can empty it herself. (reference Rogue Lung thread below). Once she has dates for final baseline imaging, it's back up to San Francisco since all imaging must be completed after written consent is signed (which was today). Imagine and blood-work must all be done on the USCF campus since where the clinical trial is registered. That's the same with blood work every two weeks... bouncing back and forth between Simi Valley and San Francisco.
Once the trial sponsor accepts the inclusion/exclusion criteria after all the tests are completed, only then can she definitively be approved for the trial. Then (you guessed it), back up to UCSF to take more blood, take the med... a pill form chemo tablet, then give more blood later in the day.
Wait, what!? Did I really just read chemo? Yes. There were some assumptions this trial was an immune-therapy but not the case here. The most common side effects with this drug include but not excluded to rectal bleeding, discoloration and/or dislodging of finger and toenails, and lips turning and staying green. <- don't read that again, only kidding but don't you love those commercials on TV?
All kidding aside, the most common side effects for this drug are fatigue.... and there may be some nausea. So how's Madi? As you can see in the picture, she's going with the flow. Madi has some of the best clinical researchers and brightest minds on her bench,
You can see more of January by pressing <<<Previous, lower left
