Hello Madison fans and followers. Hopefully most people perceived the prior post as no news is good news. Very little change relative to Madison's pain, so no updates here. She had consult with a cardiologist this afternoon for her elevated heart-rate. He's starting her on a med that should not impact her blood pressure, nor should it have an adverse reaction with the other meds she's on. She meet with a swallowing specialist tomorrow Friday.
With the holiday weekend coming up, we're hoping for three days of no-change, and then the fun starts up again. Five days of radiation begins Tuesday the 5th at UCLA. Again, it's not a curative treatment but may reduce the tumor sizes offering pain relief so less meds, and might even compliment/enhance the immunotherapy treatment, another one of those is also scheduled next week. Interestingly there's a clinical trial open on the east coast testing that combination... immuno+radiation, so we suspect the wicked smart people are on to something. One of the things we learned early in this journey... you don't want to look back from the future and wish you'd been more aggressive early-on, so chemo, immunotherapy, and radiation, oh my.
Love,
The Jones Family
With the holiday weekend coming up, we're hoping for three days of no-change, and then the fun starts up again. Five days of radiation begins Tuesday the 5th at UCLA. Again, it's not a curative treatment but may reduce the tumor sizes offering pain relief so less meds, and might even compliment/enhance the immunotherapy treatment, another one of those is also scheduled next week. Interestingly there's a clinical trial open on the east coast testing that combination... immuno+radiation, so we suspect the wicked smart people are on to something. One of the things we learned early in this journey... you don't want to look back from the future and wish you'd been more aggressive early-on, so chemo, immunotherapy, and radiation, oh my.
Love,
The Jones Family
