As mentioned Madi's room was on the 18th floor at MGH and had an great view of the Charles River and the fireworks. Take a last look... Madi was discharged from the hospital today, another major milestone!
The ride to Christopher's Haven was uneventful. Their mission statement: "A Home for Kids with Cancer When Cancer Hits Home". It's an outstanding organization that is similar to the Hope Lodge, but for kids and their families, but on a much smaller scale... for now.
The brown building (below the chopper blade) is where Christopher's Haven is: 7 individual apartments that occupies half of the second floor. The ride there was by wheelchair, directly across the street from MGH (and no, not by chopper).
The ride to Christopher's Haven was uneventful. Their mission statement: "A Home for Kids with Cancer When Cancer Hits Home". It's an outstanding organization that is similar to the Hope Lodge, but for kids and their families, but on a much smaller scale... for now.
The brown building (below the chopper blade) is where Christopher's Haven is: 7 individual apartments that occupies half of the second floor. The ride there was by wheelchair, directly across the street from MGH (and no, not by chopper).
The plan is to remain in Boston for about two more weeks. Upcoming goals are stretching, strengthening, endurance, avoiding infection, and gaining weight. Madi will have doctor appointments daily for the first week, with the light at the end of the tunnel: each medical team signs off the second week, and Madi can ideally return home to California for 2-3 weeks. In late July or early August she'll return to MGH for the final round of proton radiation, either 11 or 15 sessions (TBD, which are M-F only).
The common theme from doctors, nurses, and physical therapists include phrases such as "Madi is very tough, determined, doing excellent, working very hard, outstanding progress, we're all very pleased, etc". Madi continues this leg of her journey with absolute determination and conviction to beat chordoma.
The common theme from doctors, nurses, and physical therapists include phrases such as "Madi is very tough, determined, doing excellent, working very hard, outstanding progress, we're all very pleased, etc". Madi continues this leg of her journey with absolute determination and conviction to beat chordoma.
