The MGH Chordoma team was able to remove all of the tumor tissue that they could see over the course of the two scheduled surgeries, June 24 & 26. Additionally they were able to accomplish this extremely complex surgery in less intrusive way than planned. Madi will have more side-to-side and up-and-down head movement than expected. Less restricted movement is a blessing and a gift. Add to that… much less surgically invasive, got all of the tumor that they can see, she didn't need a tracheotomy, nor did she sacrifice a major artery. Thank God, and thanks to the awesome team of chordoma specialists at MGH.
Madi has good nerve function and strength in her limbs. The bone graph (from her left leg) went perfectly in to her neck. She has no visible signs of tumor (hence the follow-on radiation in a month or two). She has no scars on her face, did not need a tracheotomy, and didn't have to lose any arteries.
After surgery 1 of 2 as Madi was waking up, she rubbed the back of her head and said "why did they shave the back of my head?" The favorite... "Wait... what... how many ^%$#@ tubes do I have coming out of my arms"?
Thanks for your love, support, and prayers.
The Jones’
Madi has good nerve function and strength in her limbs. The bone graph (from her left leg) went perfectly in to her neck. She has no visible signs of tumor (hence the follow-on radiation in a month or two). She has no scars on her face, did not need a tracheotomy, and didn't have to lose any arteries.
After surgery 1 of 2 as Madi was waking up, she rubbed the back of her head and said "why did they shave the back of my head?" The favorite... "Wait... what... how many ^%$#@ tubes do I have coming out of my arms"?
Thanks for your love, support, and prayers.
The Jones’
