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Sunday Updates

10/25/2015

 
7:30 AM: All things considered, another decent night sleep for Madison and her mom. Another milestone, drain 3 of 3 was removed, one less thing tethering her to the bed! Her IV tree has only one slow drip bottle of Tylenol. There will be a couple more bags later when it's time for antibiotics, but less vs. more bags on the IV tree is a very happy thing. She's still being (feeding tube) fed fours times a day, and seems to be tolerating that well. Pain seems to be in check too. 
8:00 PM: More of the same the remainder of the day, but a much longer walk today than yesterday. She's still quite swollen but it looks better each day, and smiles come easier. 
Next steps: The plan is to remove the cast on her arm (donor tissue site).  The goals are spending more time in the chair and on her feet, and they're suggesting she may be out of ICU and moved to a regular hospital room Monday or Tuesday, which is a mixed blessing. ICU is a very noisy environment, but the nurse to patient is 1:1 or 1:2. In a regular room she's have to share her nurse with other patients but it'll be much quieter. 

| Over the weekend Madi spent about 8 hours in a chair and took three walks, each longer than the last. Consistent with her other surgeries, the pattern is sitting on the bed, heart-rate is good. As she walks, it slowly creeps up. By the time she gets back to the room, her heart is revving like a sewing machine. Progressive mobility, more each day. When asked if she wanted to go for a walk or sit in the chair, she wrote on her white board "I need to".

​Get 'er done.


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