Friday was a mostly good day but the pain crept up in the late afternoon and lingered until bedtime. All in all, a decent day considering a few appointments were accelerated from late next week, to mid-week. Unfortunately a rough evening from a pain perspective
Next steps:
Saturday, Sunday, Monday... rest and recondition, calories and hydration. This weekend a palliative pain specialist will come to the house. As luck would have it their office is in West LA, but the PA lives in Woodland Hills... about 30 minutes away. Keep in mind "palliative care " is simply outpatient symptom relief nb a pain management specialist.
Next Tuesday the plan is 24 hour bag of chemo in Santa Monica. Madison will be hooked up to a pump-in-a-bag that will be a slow trickle and comes home with her and will be removed Wednesday... which will be a busy day. Madi also has an appointment with the UCLA thoracic surgeon, and another with a radiologist on Wednesday. As mentioned in prior posts, surgery is highly unlikely but radiation is probable: neither would be curative but the idea is symptom relief until the immunotherapy meds kick in, and kick her cancer butt. Faith and hope.
Love,
The Jones Family
Next steps:
Saturday, Sunday, Monday... rest and recondition, calories and hydration. This weekend a palliative pain specialist will come to the house. As luck would have it their office is in West LA, but the PA lives in Woodland Hills... about 30 minutes away. Keep in mind "palliative care " is simply outpatient symptom relief nb a pain management specialist.
Next Tuesday the plan is 24 hour bag of chemo in Santa Monica. Madison will be hooked up to a pump-in-a-bag that will be a slow trickle and comes home with her and will be removed Wednesday... which will be a busy day. Madi also has an appointment with the UCLA thoracic surgeon, and another with a radiologist on Wednesday. As mentioned in prior posts, surgery is highly unlikely but radiation is probable: neither would be curative but the idea is symptom relief until the immunotherapy meds kick in, and kick her cancer butt. Faith and hope.
Love,
The Jones Family
