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October 1st Update

10/1/2015

 
There has been set-back, but prognosis is good. First and foremost, it’s NOT cancer/tumor recurrence related. Thank God for that!  
 
Looking back: Madison has a thin titanium plate in the front of her upper spine connecting C2 to C5 (C3 and C4 vertebrae were removed). There is also hardware in the rear and additionally, her medical team took a piece of her fibula, and grafted C2 to C5 last year. That fusion looks very good. <- that is very important.  
 
Current status: unfortunately the thin plate has worn a small hole in her throat. The good news with the bone fusion being solid, she no longer needs the hardware: Surgery is tentatively scheduled October 15, the front plate will be removed and her throat will be patched/grafted.

Madison is more angry than anything, very upset that she needs to drop out of school again, that she can’t go to the gym, that her sense of normalcy has been temporarily revoked, yet seems un-intimidated by the surgery. She’s determined to plow through this and reclaim her ‘normal’.
 
On a brighter note, she’ll actually be able to leave the hospital this time without a neck brace and with a full head of hair!

Thank you for your thoughts and prayers. 
The Jones'

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