One of the morning medical rituals is 7AM meds. Most of the time we're able to sneak in to Madi's room and push them in her feeding tube without waking her up. Not today. She was fiddling (I think) with Twitter and Facebook, and mornings are always a great opportunity to chat if she wants company. This morning we discussed holiday rituals, read more about on holiday grief and as written earlier, we chatted that's it's okay to not send cards and not feel pressured to give or receive gifts. I was teasing Madison, trying to bait her in to saying something to people as she sees or speaks to them 'do you want to know what I really want for Christmas this year' (how's that for an attention getter, and pause letting it hang in the air a bit :-) Then tell them you've always wanted a Home Depot gift card. People will think huh... then probably realize perhaps someone put her up to it (and no, do not send Home Depot Gift cards, we wouldn't accept!).
Chatting about the upcoming weekend Madison mentioned going to Church on Saturday. Easy answer, what ever you want to do as long as it's not skydiving. While briefly discussing the logistics of getting her to Church Madi said "it's only my legs".
We all grieved her losing the mobility in her legs, but there is a better sense of acceptance, adaptation, and what's the next thing for her to look forward to.
Chatting about the upcoming weekend Madison mentioned going to Church on Saturday. Easy answer, what ever you want to do as long as it's not skydiving. While briefly discussing the logistics of getting her to Church Madi said "it's only my legs".
We all grieved her losing the mobility in her legs, but there is a better sense of acceptance, adaptation, and what's the next thing for her to look forward to.
