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INI1-Negative - Good News

12/20/2016

 
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Updated December 20: One of the core prerequisites for the clinical trial mentioned in the post below is whether Madison’s ridiculously rare cancer/tumor exhibits the proper DNA traits to be considered for the trial, specifically being INI1-negative.
Looking back: Madison had surgery in Boston in June of 2014. Pathology from that surgery had no INI1 conclusions. Since MGH has performed a deeper analysis of Madison’s tumor and the results were returned today. Her tumor is INI1-negative, so we’re past the first major hurtle getting in to the trial!
   
    FAQs 
if accepted as a candidate for the trial
  • What kind of treatment is this? It’ll likely be a pill or an oral solution
  • Will she lose her (wicked naturally curly post-chemo) hair?  Not likely 
  • What's next: Going to San Francisco in the coming weeks to continue the qualification process.  

More details in the post below. 


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