So how is Madi? Last night she went over to moms and today they had pedicures. Madison came home for a bit in the afternoon and went over to moms again tonight. Nausea appears to be a thing of the past, and Madi's pain remains well managed.
Again we encourage you to learn more about the Chordoma Foundation and their innovative approach to improving the lives of people impacted by chordoma while leading the search for a cure. They have stood beside our family since 2013, and we'll be organizing a fundraiser in the near future... details to follow. Don't forget to download the booklet... you might recognize a picture or two at this link.
The Jones Family