Thursday Post, hello Madison followers! Today she had her first immunotherapy treatment. Early next week we hope to meet with an expert pain physician, and have appointments with a thoracic surgeon, an radiologist, and her oncologist for another round of chemo. While surgery is highly unlikely and wouldn't be curative, a chordoma expert at UCLA suggested a thoracic consult, so she goes. Radiation is likely on the horizon for her. It wouldn't be curative either but may ease her pain by reducing the size of the tumors, and may complement the effectiveness of the immunotherapy. Chordoma is so rare and her variation the rarest and most aggressive, there simply isn't a how-to cookbook to treat it. Yet.
Last night was a no-so-great sleep night, but she rebounded amazingly today. After 12 days in the hospital mostly horizontal and coming home Tuesday night, yesterday and last night were rough on her. Today knowing she had to go to Santa Monica and would be vertical all day, she really did amazing. Truly amazing!
Friday through the weekend, she'll get rest some, recondition her body and soul from the stint in the hospital, plans to pack on some weight she lost in the hospital, while keeping the faith and hope alive!
Love,
The Jones Family
Last night was a no-so-great sleep night, but she rebounded amazingly today. After 12 days in the hospital mostly horizontal and coming home Tuesday night, yesterday and last night were rough on her. Today knowing she had to go to Santa Monica and would be vertical all day, she really did amazing. Truly amazing!
Friday through the weekend, she'll get rest some, recondition her body and soul from the stint in the hospital, plans to pack on some weight she lost in the hospital, while keeping the faith and hope alive!
Love,
The Jones Family
