Looking back: in October Madison had major surgeries to repair a hole in her throat from a titanium plate connecting vertebra C2 to C5. The good news: she no longer needs the hardware since the bone graft looks good! The bad... the plate was visible when she opens her mouth and says "ahhh". The surgeries... tissue from her wrist was harvested with arteries, then both were stitched to her throat to patch the hole.
On Wednesday the 16th we met with ENT surgeon Dr. Alice Lin, who said the patch looks great, is "completely healed". Next we met with neurosurgery PA David who saved the titanium plate for Madison, pictured.
On Wednesday December 23rd Madison will have a video swallow study. Given she hasn't eaten since October food is smelling especially good. Next steps TBD, likely therapy to strengthen everything effected.
Over the course of treatments, Madison's hairdo has transitioned from blond and straight in 2013, to bald as a cucumber. Then short and sassy in 2014, back to bald and beautiful after more chemo.
It's been a year since her last chemo treatment and she is rocking it, waaaaaay curly and wicked cute! Yes... that's a "new normal" ... naturally curly.
On Wednesday the 16th we met with ENT surgeon Dr. Alice Lin, who said the patch looks great, is "completely healed". Next we met with neurosurgery PA David who saved the titanium plate for Madison, pictured.
On Wednesday December 23rd Madison will have a video swallow study. Given she hasn't eaten since October food is smelling especially good. Next steps TBD, likely therapy to strengthen everything effected.
Over the course of treatments, Madison's hairdo has transitioned from blond and straight in 2013, to bald as a cucumber. Then short and sassy in 2014, back to bald and beautiful after more chemo.
It's been a year since her last chemo treatment and she is rocking it, waaaaaay curly and wicked cute! Yes... that's a "new normal" ... naturally curly.
Our family is so touched and thankful, truly to our cores. For Madison... for our family to have so many loving people following her journey, sending positive energy and prayers. We are blessed to have each of you in our lives.
Love,
The Jones'
Love,
The Jones'
