Hello Madison fans and followers, good news! The target tumors being monitored did NOT grow: the larger 'watch items' actually decreased in size by 25%, which medically suggests the disease is currently "stable". A 30% reduction is considered in retreating or remission and the doctor reported that he's very happy with the results. Remember, we're only eight weeks in. The pleura is fairly messed up considering what's been going on in there, but "not especially alarming".
So wait, what!? How can it go from "worsening of metastatic disease" early in the week, to favorable results, the physician being very happy"?!
We suspect based upon the 'messed up pleura', told that reflections from the hardware in her neck, scar tissue, it can be extremely difficult to determine exactly what's going on without extensively studying and painstaking comparisons, while also factoring in all that's happened in that region of her body since November... not since just late January, all while understanding the aggressive nature of this rare disease. There's a high probability the person who read the initial imaging and wrote the preliminary reports has never seen or even heard of chordoma... not their fault.
So wait, what!? How can it go from "worsening of metastatic disease" early in the week, to favorable results, the physician being very happy"?!
We suspect based upon the 'messed up pleura', told that reflections from the hardware in her neck, scar tissue, it can be extremely difficult to determine exactly what's going on without extensively studying and painstaking comparisons, while also factoring in all that's happened in that region of her body since November... not since just late January, all while understanding the aggressive nature of this rare disease. There's a high probability the person who read the initial imaging and wrote the preliminary reports has never seen or even heard of chordoma... not their fault.
We now have a much healthier level of patience and appreciation for the time it takes from the day of the CT scan or MRI, to get FINAL report by an expert physician. The roller coaster ride this week was avoidable but again, the coordinator who offered the preliminary written report did it with the best of intentions.
Chordoma and Madison Rose... both one-in-a-million!
Chordoma and Madison Rose... both one-in-a-million!
