To review: Madison is still unable to eat food or drink water orally... it all goes in via a syringe through a feeding tube. While incredibly inconvenient, Madison plows through it... about 50 syringes a day. When she went to to Colorado (for a week ... see February 2016 in the archives section), she made arrangements to get a case of liquid 'food' there ahead of her.
Next steps: The short term focus has been on the procedure performed yesterday, so Madison is currently in the 'wait-and-see' mode. If she's able to consistently swallow without aspirating in to her lungs, we perceive that as a very good sign and ideally she'll progress to applesauce and other thicker foods in a quest to regain the throat muscles and reflexes required to simply swallow a bite of food. So this phase we feel will determine next steps.
This past weekend the family went camping at the beach. It was very windy Friday evening, beautiful Saturday and Sunday! This picture was taken Friday evening with the wind coming from behind Madison, matting her hair to her face.
Madison's hair used to be straight, and lighter. Post-chemo... it's now a tad darker and wicked curly :-)
Thanks for following along... we'll be posting more next week.