A week ago today the Jones woke up in Boston, ending the last planned trip for 2014. Five trips in the last ten months, a total of 14 weeks in Boston hotels and short term apartments thus far, it's like being transported from one planet to another.
A heartfelt thanks to Al at MGH for being a wealth of information, a chordoma expert/liaison/guide and our first point of contact at MGH. Thanks to Anne for her dedication and guidance, Christine, Ron, and Kathy for their excellence in the Proton Center, Jesse in Lundar-9, Caitlin and the awesome nurses in ICU, Dr. Choy for his collaboration with Dr. Storch at Kaiser, Tessa's guidance during throat/swallowing therapy, and doctors Hornicek, Schwab, Delaney, Cetrulo, Mullen, and Rocco for their expertise and teamwork treating such a complicated case. Kudos too to Dr. Brara and his team at Kaiser Sunset for all they did in 2013, and for passing the baton to MGH for specialized radiation during surgery called dural plaque, and referring out for Proton Beam Therapy.
The MGH team has passed the treatment baton back to Kaiser, and Madi starts chemo regime 6 of 8 on Monday September 22 under the expertise of Dr. Storch at Kaiser Woodland Hills, her team of experts on the 4th floor, and the awesome nurses in on the 3rd.
When ‘i’ is replaced by ‘we’… even ‘illness’ becomes ‘wellness’. All of this is only made possible by the love, support, and prayers from family and friends. We are truly blessed.
A heartfelt thanks to Al at MGH for being a wealth of information, a chordoma expert/liaison/guide and our first point of contact at MGH. Thanks to Anne for her dedication and guidance, Christine, Ron, and Kathy for their excellence in the Proton Center, Jesse in Lundar-9, Caitlin and the awesome nurses in ICU, Dr. Choy for his collaboration with Dr. Storch at Kaiser, Tessa's guidance during throat/swallowing therapy, and doctors Hornicek, Schwab, Delaney, Cetrulo, Mullen, and Rocco for their expertise and teamwork treating such a complicated case. Kudos too to Dr. Brara and his team at Kaiser Sunset for all they did in 2013, and for passing the baton to MGH for specialized radiation during surgery called dural plaque, and referring out for Proton Beam Therapy.
The MGH team has passed the treatment baton back to Kaiser, and Madi starts chemo regime 6 of 8 on Monday September 22 under the expertise of Dr. Storch at Kaiser Woodland Hills, her team of experts on the 4th floor, and the awesome nurses in on the 3rd.
When ‘i’ is replaced by ‘we’… even ‘illness’ becomes ‘wellness’. All of this is only made possible by the love, support, and prayers from family and friends. We are truly blessed.
