6:30 AM: Madison was awake upon dads arrival. The night nurse mentioned that Mom and Madi worked hard last night on sitting her up, then her sitting up and doing mild leg exercises... progressive mobility, each day more than the day before. Her face is still extremely swollen but she appears to have better color this morning that last night. She's not yet been out of bed but we suspect that's coming today. She has hoses and drain bulbs in her neck, arm, and leg so assuming one, two, or all come out will influence moving to a chair. Feeding tube food started yesterday and she's tolerating that well.
10:30 AM: As per usual the doctors came through. The drain in her arm was removed, two remaining and each is milestone albeit a small one.
6:15 PM: Day 3, rounding the bend. There were a few small milestones today. A couple of IV bags removed, but unfortunately a couple of bags added.
Looking back, Madison had a hole in her throat immediately in front of the plate and vertebra. We were worried about infection, what happens to any food or beverage that might leak through the hole? Madison was placed on antibiotics weeks ago but unfortunately while that seemed to address the soft tissue infection, it's not effective for a bone infection which requires IV strength antibiotics. Madison does have a bone/fungal infection and will require six weeks of antibiotics. That does not mean she has to stay in the hospital that long, but we'll be sent home with bags of antibiotics and an IV tree to continue from home.
Day was day today and night shall be night. Madison is getting back in to that rhythm with the light up and drapes open all day. She was up pretty much the hole day, which included sitting in a chair for two hours. That's great for recovery!
Next Steps: Madi started with a feeding tube trickle to ensure she can tolerate it. Tonight she'll have a liquid dinner, a can of g-tube juice as a meal, getting the body used to have meals morning, noon, and night. For desert, the same. Her face is extremely swollen as one could expect from such an intrusive surgery, so hopefully the chipmunk cheeks will become gradually smaller.
10:30 AM: As per usual the doctors came through. The drain in her arm was removed, two remaining and each is milestone albeit a small one.
6:15 PM: Day 3, rounding the bend. There were a few small milestones today. A couple of IV bags removed, but unfortunately a couple of bags added.
Looking back, Madison had a hole in her throat immediately in front of the plate and vertebra. We were worried about infection, what happens to any food or beverage that might leak through the hole? Madison was placed on antibiotics weeks ago but unfortunately while that seemed to address the soft tissue infection, it's not effective for a bone infection which requires IV strength antibiotics. Madison does have a bone/fungal infection and will require six weeks of antibiotics. That does not mean she has to stay in the hospital that long, but we'll be sent home with bags of antibiotics and an IV tree to continue from home.
Day was day today and night shall be night. Madison is getting back in to that rhythm with the light up and drapes open all day. She was up pretty much the hole day, which included sitting in a chair for two hours. That's great for recovery!
Next Steps: Madi started with a feeding tube trickle to ensure she can tolerate it. Tonight she'll have a liquid dinner, a can of g-tube juice as a meal, getting the body used to have meals morning, noon, and night. For desert, the same. Her face is extremely swollen as one could expect from such an intrusive surgery, so hopefully the chipmunk cheeks will become gradually smaller.
