6:45 AM: Madison and her mom are sleeping, so I'm sitting in a waiting room to let them both sleep. I spoke with the night nurse: Their night was consistent with having had major surgeries the day before, with an ongoing quest to find that perfect blend of meds while sustaining minimum levels of heart-rate, reparation, etc.
Next step: Potentially unhooking the assistance breathing contraption with naps and more naps for Madi.
1:00 PM: Getting closer to that balance, not quite there. The ventilation machine was disconnected and when awake, Madi was breathing easily on her own. When she would doze off, she would stop breathing for a very short bit, setting off alarms. Rinse and repeat. And repeat. Becoming completely sleep deprived, they put her back on the ventilator about noon and goosed her with the high octane pain meds so she can take a nice long nap.
Next step: Post nap, remove the ventilator finding the balance of pain management and breathing unassisted while sleeping.
6:10 PM: A much better balance, we're really close to that fine line. She's off the ventilator, and can nap without setting off the alarms! Wooo Hoooo!
Next steps: hibernate some more, have her sitting in a chair Friday.
Going on record: The nurses here are awesome, all nurses are. They are highly skilled caregivers and have remarkable influence with the doctors. Having had spent so much time in hospitals, we've learned that first hand. Another thing they like, "hey waitress", just light flight attendants... try that some time and let us know how that works out. ;-)
Next step: Potentially unhooking the assistance breathing contraption with naps and more naps for Madi.
1:00 PM: Getting closer to that balance, not quite there. The ventilation machine was disconnected and when awake, Madi was breathing easily on her own. When she would doze off, she would stop breathing for a very short bit, setting off alarms. Rinse and repeat. And repeat. Becoming completely sleep deprived, they put her back on the ventilator about noon and goosed her with the high octane pain meds so she can take a nice long nap.
Next step: Post nap, remove the ventilator finding the balance of pain management and breathing unassisted while sleeping.
6:10 PM: A much better balance, we're really close to that fine line. She's off the ventilator, and can nap without setting off the alarms! Wooo Hoooo!
Next steps: hibernate some more, have her sitting in a chair Friday.
Going on record: The nurses here are awesome, all nurses are. They are highly skilled caregivers and have remarkable influence with the doctors. Having had spent so much time in hospitals, we've learned that first hand. Another thing they like, "hey waitress", just light flight attendants... try that some time and let us know how that works out. ;-)
