They can't prescribe IV pain meds for take-home use: required, trained nurses with all of the electronic monitors and resuscitation equipment in case of any respiratory challenges. Assuming we get her home this week, she may or may not come home with an oxygen tank.
Up until yesterday they didn't want her out of bed and things seemed to deteriorate since her arrival Friday. She's still on IV antibiotics for the pneumonia, her can heart rev like a sewing machine at times, oxygen level a tad low... which may be her new normal. What a huge difference a half a day makes!!
Next steps are to be IV free, try and get her home this week, then fatten her up like a Thanksgiving turkey, ideally to be physically prepared to continue with the current treatment roadmap, while exploring all options her expert chordoma team may consider.
The Jones Family